Friends of FSH Research

Friends of FSH Research is working to impact the lives of those affected by FSH Muscular Dystrophy (FSHD) through direct financial support of FSH research.
Our Vision: A future where a diagnosis of FSHD is followed by "we have a treatment."

Show All
Address: 217 19th Pl
Kirkland, WA 98033-4903
Phone Number: 425-827-8954
EIN: 86-1108537
Our deepest gratitude to our community and all those who have believed in and supported our mission. Our dedicated board members, our volunteers, and our donors have all made it possible to stimulate new interest in FSHD research and to fund important studies which have helped to bring us closer to finding a treatment.
Since 2004, Friends of FSH Research has funded over $3.1 million in research to find a treatment and a cure for FSHD, the most prevalent form of muscular dystrophy. In working with researchers at UW Medicine, Fred Hutchinson Cancer Research Center, Seattle Children's, and others around the globe, their efforts have provided key insights into the cause of the disease. This major breakthrough gives great hope to the over half million people suffering from this disease and spurs everyone in this field on to continue in their work! None of this could be accomplished without the generosity of everyone who has joined this effort over the years. We encourage you to be part of this amazing group of supporters!